Monday 31 March 2014

THE RIGHT STUFF

             Growing up in the 60’s and 70’s, I‘ve always retained a strong sense of social values including being a passionate proponent for full equality across the board regardless of gender, beliefs or disability.  In fact, I fondly recall working with the “Disabled Ski Club of Great Britain” training some blind athletes on the dry ski slopes in England in the early 80’s even before my own spinal cord injury.  In all my worldly travels and varied experiences I’ve always tried to empathize with others and strived to see how I would live and react if our circumstances were reversed.  Perhaps I was naïve, but prior to my accident I had no idea to what degree people with disabilities were marginalized, ostracized and discriminated against be it consciously or subconsciously.  Indifference and ignorance is often worse than outright and overt discrimination.  As the old saying goes, “walk a day in my shoes” and then you “just might” see part of my life’s challenges.  I would go one step further and add that we in the disabled community call all those in the able-bodied community TAB’s which is an acronym for “Temporarily Able Bodied”!  Of course nobody chooses to lose any amount of mobility or independence yet as I’ve learned first-hand at the tender age of 24 that accidents can happen to anyone, at anytime and anywhere … most often in a heartbeat.

First time - Adaptive Waterskiing - Heron Park, England '95
           I fundamentally think that the riddle of spinal cord injury research will eventually pay dividends, ideally finding a cure to regenerate paralyzed limbs either partially or completely throughout the body.  Until that time, we (people with disabilities) still have to live in the “here and now”.  This means, not predicating all our resources on a future cure but rather, maximizing our collective quality of life through education, acceptance
and applicable research that helps us become more independent and participate fully in all aspects of society.  Depending on your comfort zone, this could range from attending your first concert and pursuing adventure sports to playing a musical instrument or even ultimately going into space with Sir Richard Branson’s “Virgin Galactic” set to launch their inaugural commercial flights later this year!

        As it would require writing a book to address all of my 30+ years of disability activism and advocacy work, I thought it would be more impactful to elaborate on one major personal incident which has had far reaching consequences but eventually resulting in changes which have benefited all of society.  It seems that my greatest lessons in life have usually come as a direct result from my own personal setbacks and adversity which at the time seemed so overwhelming that I thought I’d never overcome those obstacles and view the world with the same level of trust and unbridled optimism. 
                                                                                 
Ottawa Carleton - Injury Prevention Week - Organizing Committee - City Hall '95
 
            Some of those major roadblocks came in the early fall of 1996 when I hired a young lady (let’s call her LK) to attend to some of my personal care.  At the time I was the Educational Coordinator for The Rehabilitation Centre’s – Disability Awareness and Prevention Program.  Working flat out in a full time job, frequently after dinner I would get transferred to bed early by LK completely unaware that something sinister was taking place right under my nose.   

Flash forward a couple of weeks when I was performing some routine banking at my local Canada Trust branch and then reviewed my pass book (a booklet commonly used before internet banking). Suddenly, to my horror, I discovered eleven unauthorized withdrawals on five separate days from my personal bank account. After a thorough review, I calculated that I had been defrauded a total of $5,207.00. I then went directly to the Ottawa-Carleton Police Station to file a report. I was advised by a detective to see a lawyer before the police became involved, because I would need an affidavit testifying that all the transactions were unauthorized and not made by me. Apparently, in this type of fraud, the person usually reporting the crime is the first prime suspect.  After getting all of my paperwork in order I returned to the police station to file a formal report but was advised by the detective, due to the back log of cases, no investigation would take place for many months.

            With that knowledge, I took matters into my own hands. Instantly, I knew who to suspect was behind these crimes. The only person who had access to my PIN number and regularly helped me with my banking and my care was my new personal attendant, LK.   Over the next few days I did a little more investigative work and all the evidence pointed to LK. I felt so very violated by this person since she was always in my home, I trusted her with my most intimate details and even treated her like a friend. I couldn't comprehend how someone whom I employed, at a good hourly wage, could breech my trust and live with themselves in the bargain. When I eventually met up with LK I relayed all of the terrible events of the previous week but the entire time she never said a word and surprisingly, never offered any empathy or concern for my loss! Then I asked outright if LK had ever taken my ATM card without my knowledge or whether she knew anything about these crimes or had any involvement whatsoever? She denied everything.

            A few months later I received a call from a Police Detective to inform me that under duress, LK finally admitted to stealing my ATM card from my home (wallet) and was a direct accomplice by giving her boyfriend’s my bank card and PIN number on five separate occasions. In order to avoid prosecution, LK plea bargained with the police. In return for identifying her boyfriends in connection with the crimes, she was granted immunity and would not be implicated in the frauds. What makes this fraud even more distressing is the fact that, due to my disability and reliance on others, my vulnerable situation was exploited and my trust seriously violated. The repercussions of these crimes were felt financially and psychologically for many years afterwards.  Worse, even after all these years I have been unable to place 100% trust in my personal care attendants and this has negatively impacted on my working relationship with the people I depend on for my day to day routines and literal survival! 

In the hope that true justice would prevail and that these young individuals would realize how much their crimes have hurt me and set back my life, I wanted to attain some assurance that the three would be held judicially and morally accountable for their actions.  I subsequently launched, pursued and was eventually successful in a civil action against the perpetrators which saw them (2 boyfriends) paying me back all of the funds that I had been defrauded.  In order to address this matter systemically across North America while hoping to prevent others from ever having to endure what I went through, I launched a formal complaint with the Canadian Human Rights Commission (CHRC) against all 6 federally chartered banks.  In essence, these nationally regulated institutions failed all of their customers with physical disabilities by not accommodating our “special needs” in the provision of wheelchair accessible ABM’s and subsequently leaving us with little choice other than having to divulge our PIN numbers to a third party. 

After being the longest CHRC complainant case (over 9 years from start to finish) in battling the banks, their Toronto based lawyers and their lobbying arm, the Canadian Bankers Association, in 2005 I was finally victorious in having a wide range of policies, practices and disability accommodation issues agreed to by all the 6 banks.  At a reported cost of more than $1 Billion the banks were forced to have at least one lower counter ABM at every location across Canada in addition to being signatories to the following ongoing initiatives.

1.    Reaffirm their Commitment to implementation of the Canadian Standards Association’s (CSA) “Barrier-Free Design for Automated Banking Machines.

2.     Develop an implementation plan for compliance with the ABM standard and report on an annual basis their progress to the CHRC.

3.  Continue to develop barrier-free access standards for Point of Sales (POS) devices by encouraging participation by retail, manufacturing and the Acquirer industries.

4.      Provide print information available to the public in alternate formats.

5.      When constructing new premises and significant renovations at bank branches, accommodate the needs of people with disabilities to the point of undue hardship.

6.   Consider the needs of people with disabilities in the development of web-based services and products.

7.    Maintain an internal dispute resolution process for addressing customer complaints specifically available to people with disabilities who wish to raise any issue concerning access to financial services.

8.    Report on the accessibility of their services to people with disabilities in their respective annual Public Accountability Statements.

As I am legally bound not to disclose any further details about my Human Rights case, I am pleased that the many years of fighting for my personal rights, systemically lobbying the banking industry and “going the distance” in pursuing a satisfactory resolution has finally paid off for all Canadians with disabilities. 

World Toboggan Speed Record Attempt - Les Arcs, France '87
The video clip below speaks mainly to my disability human rights advocacy work, awareness and fundraising through the World Toboggan Speed Record attempt and the ‘Round the World Challenge charitable organization.  I have had the distinct honour of working with and representing some of the most notable organizations in the world including the United Nations, World Bank, Christopher Reeve Paralysis Organization, Canadian Paraplegic Association, The Back-Up Trust, General Motors Corporation, Pfizer Inc. and the Government of Canada. 

With more than a billion people with disabilities around the planet and growing, I will continue to act in a leadership role as a true activist, advocate and change maker.  Stay tuned for my next Quadrant which will be posted at the end of April.  If you liked what you’ve read and watched, please send me your comments and “likes” while sharing this story with your network of friends.

Hope to see you on the sunny side of the mountain!




                                                                                 

Saturday 1 March 2014

The Olympian Within

Stretched Out
       '83 Tignes, France
         Photo: Mark Junak 
                       
Bumps at Sundown
 '83 Merribel, France
Photo: Mark Junak
               

                           THE                                         OLYMPIAN                              WITHIN

                                   Canadian Cowboy Mike
                                               Ski Movie "Aladin's Wunderski"
                                               '81 Sahara Desert, Morocco
                                                                Photo: Fuzzy Garhammer 

Friends, thank you for all of your comments, likes and shares on my last blog.  For all our left brain audience who favor analytics, I’m pleased to announce that my inaugural posting has received more than “four figures” number of visitors so I’m stoked and encouraged to keep writing and sharing some of my life’s story with as much clarity and candor that my 52 year old mind can recall and form into comprehensible sentences. 

Unless you have been living on the moon or the Space Station, you well know that our global weather patterns are dramatically changing in real time.  In writing to you from Ottawa, Canada, we have taken a few direct blows from old mother nature due to the unpredictable jet stream only to be flattened by old man winter with a rather unusual flow from the polar vortex.  Yet somehow, us hardy Canadians (Scots) manage to survive and some even thrive throughout this virtually unprecedented season affecting all of North America, albeit, we’re all suffering from a bit of cabin fever!

Now that our Olympic hangover has had a little time to wear off after 16 days of intense competition including the toll on our emotions; sometimes feeling overwhelmed, riding the highs and accomplishments, proud and elated and at other times, feeling lowly and sad only to be replicated over and over again.  I think that enough time has elapsed (at least for me) for all of us to reflect on a marvelous Sochi Winter Olympic Games.  Once somebody said that, “The World is a Stage and We Each Must Play Our Part”.  That’s sort of how I see the Olympic Games with the caveat that it takes exceptional natural born athleticism, an indefatigable work ethic, relentless dedication and a burning desire to accomplish monumental goals.  In addition, those rare and gifted individuals amongst us who do make it all the way to the Games, must be willing to sacrifice a large chunk of their life and pay the price of the thrill of victory and the agony of defeat on a worldwide stage witnessed by more than a billion avid fans, many of whom embody the spirit of The Olympian Within.

For me The Olympian Within is, foregoing all of the incredible Olympic action on television and the internet on the first full day of competition, Saturday, February 8th in favour of meeting up with my good friend and former team-mate, Steve Hambling to check out his Fortune Freestyle Development Team at the
Steve H., Mike N. & Mike A.
'76 Mt. Cascades, Quebec
Photo: The Ottawa Citizen
“Glebe Rail Jam”.  After a hearty lunch from the nearby chip truck, I witnessed young Will, age 13, perform one of his first ever “450 - Pretzel” manoeuvres off the end of a 20 foot iron clad rail and land clean to the rapturous applause from an appreciative crowd of approximately 90 competitors, judges, coaches, parents and curious onlookers.  In that moment I had flashbacks of my own career which started with my 1st ever 360 degree spin at Vorlage, Quebec at the tender age of 11 with my eyes ablaze to  the possibilities of what other tricks I could accomplish in the coming years.  As happy as I was for the Dufor-Lapointe sisters Justine and Chloe who had just respectively won Canada’s gold and silver medals in freestyle mogul skiing the same day, I kept thinking back to Will and how proud he was to “Stick It” … his new trick, in competition, in front of his peers and parents. Oh, what a day it was for Will and for Canada!

In essence, The Olympian Within is really all of us who have a small or big dream, who work tooth and nail to achieve greatness.  While some make it all the way to the Olympic podium others are satisfied by winning a local rail jam competition for a medal and a $25 gift certificate.  Yet, some among us are struggling to just get by, hoping that over the next 4 years they can build a business, land a good job, get out of debt, lose that winter weight or just seek contentment and solace.  The Olympian Within is the strength of the human spirit to endure and rise in the face of adversity knowing that tomorrow and indeed over the next 4 years many goals will be set and achieved while being abound with optimism that life will get better.  While this is my take on the inner Olympian, we are privileged to hear from a few of my Olympian friends who were gracious enough to put their thoughts and beliefs on this topic into writing.

Sonny Schonbachler: 1st Place - Gold Medal – Lillehammer Winter Olympics ’94 - Swiss World Cup Team Aerials ’84-’94.  “It means one more dream - dreaming with the athletes of today, again.”    

Konrad Bartelski: 3-Time Winter Olympian - British Ski-Racing World Cup Team – Downhill ‘74-’82.  “It is where sport rises above politics and the best athletes from all the different sports compete at the highest level.”

Melanie Palenik-Simboli:  1st Place - Gold Medal - Calgary Winter Olympics ’88 – World Champion -Combined ‘89 - 7 World Cup Wins – USA World Cup Team – Combined - ’85-‘91.  “It is forever an earned life experience that I try my best to share with others in order to inspire them to find the best in themselves!”

Graham Wilkie: Olympian - Albertville Winter Olympics ’92 - World Record Holder - Speed Skiing ’87 – British Speed Skiing Team ’83-’88.  It is choosing a goal and the path towards that goal, the struggles, pain, emotions and the sacrifices that act as a cauldron to form the person that comes out on the other side.  I believe that almost anyone could make it to the Olympics and in essence, it is “The Olympian Within” that will get them there.”

            Flash back to 1985.  There I was at age 24, in the prime of my life, working towards my own lofty goals of trying to become the World Champion in ’86 and contending for an Olympic medal at the Calgary Winter Games in ’88 held in my adopted home country of Canada.  Of course, as many of you already know, my dreams of World Champs and the Olympics were never realized as on May 18th, 1985, I attempted a Full In - Full Out, double twisting-double back flip on my trampoline only to land on my neck and suffer a severe spinal cord injury leaving me a high level quadriplegic for the past 29 years.  While it might seem like a long time ago for some of you, it feels like only yesterday to me. 

Of course life does go on, regardless of circumstances and I’ll be damned if I was going to let a disability end my life.  Rather, my injury and long rehabilitation was going to be a major Game Changer, but
Why swim with the sharks when you can play with the whales.
'06 Mike & Hubert Marineland, Niagara Falls, Ontario
Photo: Mary Anne McPhee
also an opportunity to prove to others and ultimately to prove that I could pick myself up (not literally) and rebuild my life by refocussing, setting new/different goals and still maintaining a high quality of life that would satisfy my zest for living life to the fullest. 

If you’ve made it this far, please stick around and watch the following 27 minute video compilation of  Same Game – Different Rules and Taking on the World which are two British award winning documentaries that chronicled my life in those fragile and redefining years directly following my accident.  While we have distributed both documentaries to more than 40 countries around the world, we have also donated all of the profits to a charity that is very close to my heart called The Back Up Trust www.backuptrust.org.uk.

            Friends, thanks for giving me such a strong boost of confidence and support as I continue down the path of sharing my stories on new media.  Be sure to look out for the next installment of Mike’s Quadrant around the end of March.  If you like what you’ve read and watched, please share this with your network of friends, offer your comments and “like” us on FB.  Hope to see you on the sunny side of the mountain!

Mike aka Nemies